2019年9月13日 / Last updated : 2023年5月2日 ad_n Minari group

Jusaku Minari

Uehiro Associate Professor
Field：Research Governance, Research Ethics
Jusaku Minari, PhD
Uehiro Research Division for iPS Cell of Ethics Center for iPS Cell Research and Application(CiRA)

Message

Biomedical research such as iPS cell research and genome research is dramatically advancing. However, in translating this research development into clinical settings, it is important not only to promote science but also to take into account its social implication. We would like to deliver the benefits of this science promotion to society under ethical, legal and social considerations. In this process, through discussion with various international and domestic stakeholders, we hope to value the diversity and breadth of these stakeholders’ perspectives.

Please contact me if you’re interested in working together.
Email: jusaku.minari*cira.kyoto-u.ac.jp（Please change* to @）

Biography

2005　B.S., Faculty of Environmental Engineering The University of Kitakyushu
2006　M.S., Graduate School of Environmental Engineering The University of Kitakyushu
2010　Ph.D., Graduate School of Environmental Engineering The University of Kitakyushu
2010　Postdoctoral Researcher, Institute for Research in Humanities Kyoto University
2013　Assistant Professor, Biomedical Ethics and Public Policy Graduate School of
          Medicine Osaka University
2015　Deputy Director, Department of Research Infrastructure Japan Agency for
          Medical Research and Development (AMED)
2016　Assistant Professor, Biomedical Ethics and Public Policy Graduate School of
          Medicine Osaka University
2017　Project Associate Professor, Uehiro Research Division for
           iPS Cell Ethics Center of iPS Cell Research and Application

Position

  • 2020 - Present
    AMED* Program Officer (ELSI on Infectious Disease)
  • 2019 - Present
    Collaboration with HeLEX (Faculty of Law, the University of Oxford)
    https://www.law.ox.ac.uk/people/jusaku-minari
  • 2018 - Present
    Committee Member of the Governmental Ethical Guidelines
    (Human Genome Research, and General Medical Research)
  • 2017 - 2021
    JST** Program Advisor (Future Society & AI)
  • 2016 - Present
    AMED Program Officer (Genome Research)
  • 2016 - 2018
    AMED Program Officer (ELSI on Genome Research)

*AMED: Japan Agency for Medical Research and Development
**JST: Japan Science and Technology Agency

Research activities

Selected publications

  1. A. Raz, J. Minari, K. Takashima, H. Gaydarska, Y. Hashiloni-Dolev, R. Horn. Old and new challenges regarding comparable and viable data sharing in population-scale genomic research. European Journal of Human Genetics. 2023; DOI: 10.1038/s41431-023-01355-3. 
  2. K. Takashima, T. Soma, K. Muto, K. Nishida and J. Minari. Learning to listen: a complementary approach to informed consent for patients with visual impairments. Stem Cell Reports, 2022. 
  3. J. Meszaros, J. Minari and I. Huys. The future regulation of artificial intelligence systems in healthcare services and medical research in the European Union. Frontiers in Genetics (Policy and Practice Reviews), 13:927721, 2022.
  4. A. Raz, S. Timmermans, G. Eyal, K. Brothers and J. Minari. Challenges for precision public health communication in the era of genomic medicine. Genetics in Medicine (Special Article), 24:9, 2022.
  5. N. Shinomiya, J. Minari, G. Yoshizawa, M. Dando and L. Shang. Reconsidering the need for gain-of-function research on enhanced potential pandemic pathogens in the post-COVID-19 era. Frontiers in Bioengineering and Biotechnology (Policy and Practice Reviews), 10:966586, 2022.
  6. J. Minari, N. Shinomiya, K. Takashima and G. Yoshizawa. Contiguous governance of synchronic and diachronic changes for the use of genome editing technologies. Frontiers in Political Science (Perspective), 4:825496, 2022.
  7. R. Milne, KI. Morley, MA. Almarri, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, A. Costa, C. Feijao, C. De Freitas, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, K. Liu, D. Mascalzoni, Á. Mendes, J. Minari, D. Nicol, E. Niemiec, C. Patch, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, N. Wang, G. Yoshizawa and A. Middleton. Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries. Genetics in Medicine, Vol. 24, pp 1120–1129, 2022.
  8. J. Minari, M. Yokono, K. Takashima, M. Kokado. R. Ida and Y. Hishiyama. Looking back: three key lessons from 20 years of shaping Japanese genome research regulations. Journal of Human Genetics (Perspective), Vol. 66, pp 1039–1041, 2021.
  9. K. Takashima, M. Morrison and J. Minari. Reflection on the enactment and impact of safety laws for regenerative medicine in Japan. Stem Cell Reports (Perspective), 16: 6. 2021. 

    This article is selected as the cover image for the journal. For details, please visit Stem Cell Reports website

  10. R. Milne, KI. Morley, MA. Almarri, S. Anwer, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, A. Costa, C. Critchley, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, B. Leach, K. Liu, D. Mascalzoni, Á. Mendes, J. Minari, D. Nicol, E. Niemiec, C. Patch, J. Pollard, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, N. Wang, AV. West, G. Yoshizawa and A. Middleton. Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries. Genome Medicine, 13:92. 2021. 
  11. J. Minari. Genomics and society. BIO Clinica, Vol. 36, pp 51-55, 2021 (in Japanese).
  12. K. Mikami, A. Ema, J. Minari and G. Yoshizawa. ELSI is our next battlefield. East Asian Science, Technology and Society: An International Journal, Vol. 15, pp 86-96, 2021. 
  13. J. Minari, G. Yoshizawa and N. Shinomiya. COVID-19 and the boundaries of open science and innovation: lesson of traceability from genomic data sharing and biosecurity. EMBO reports, e51773, 2020. 
  14. A. Middleton, R. Milne, MA. Almarri, S. Anwer, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, C. Critchley, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, B. Leach, K. Liu, D. Mascalzoni, A. Mendes, J. Minari, N. Wang, D. Nicol, E. Niemiec, C. Patch, J. Pollard, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, AV. West, G. Yoshizawa and KI. Morley. Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data? The American Journal of Human Genetics, Vol. 107, pp 743-752, 2020.
  15. M. Prictor, MA. Lewis, AJ. Newson, M. Haas, S. Baba, H. Kim, M. Kokado, J. Minari, F. Molnár-Gábor, B. Yamamoto, J. Kaye and HJA. Teare. Dynamic consent: an evaluation and reporting framework. Journal of Empirical Research on Human Research Ethics, Vol. 15, pp 175-186, 2020.
  16. G. Yoshizawa, and J. Minari. Next nature and next generations: dialogue at Sakushima, Sadogashima and Teshima. Islands, Vol. 261, pp 68-75, 2020 (in Japanese).
  17. A. Hibino, G. Yoshizawa and J. Minari. Meaning of ambiguity: a Japanese survey on synthetic biology and genome editing. Frontiers in Sociology (Brief Research Report), 4:81, 2019.
  18. Y. Hishiyama, J. Minari and N Suganuma. The survey of public perception and general knowledge of genomic research and medicine in Japan conducted by the Japan Agency for Medical Research and Development. Journal of Human Genetics, Vol. 64, pp 397-407, 2019.  
  19. J. Minari. Ethical, social and policy considerations for realizing genomic medicine. BIO Clinica, Vol. 33, pp 63-66, 2018 (in Japanese).
  20. J. Minari. “Genomic medicine,” in Bioethics: inheritance and development. ed. M. Maruyama (Kawashima Shoten, 2018) (in Japanese).
  21. J. Minari, K. B. Brothers and M. Morrison. Tensions in ethics and policy created by National Precision Medicine Programs. Human Genomics (Opinion Article) , 12:22, 2018.
  22. J. Minari, O. Kato, M. Sakurai and A. Saito. The novel approach of AMED in realizing genomic medicine: the process of achieving the AMED data sharing policy. Idenshi Igaku MOOK, Vol. 33, pp 168-172, 2018 (in Japanese).
  23. J. Kaye, S. F. Terry, E. Juengst, S. Coy, J. R. Harris, D. Chalmers, E. S. Dove, I. Budin-Ljosne, C. Adebamowo, E. Ogbe, L. Bezuidenhout, M. Morrison, J. T. Minion, M. J. Murtagh, J. Minari, H. Teare, R. Isasi, K. Kato, E. Rial-Sebbag, P. Marshall, B. Koenig and A. Cambon-Thomsen. Including all voices in international data-sharing governance. Human Genomics (Opinion Article) , 12:13, 2018.
  24. J. Minari. Island lessons: inheritance, solidarity, creativity (Considerations of islands, science and technologies and art). Islands, Vol. 253, pp 56-59, 2018 (in Japanese).
  25. J. Minari and G. Yoshizawa. Ethics policy and public engagement in biomedical research on genomic information. Journal of Medicine, Life and Ethics, Society, Vol. 14, pp 52-60, 2017 (in Japanese).
  26. V. Coathup, H. Teare, J. Minari, G. Yoshizawa, J. Kaye, M. Takahashi and K. Kato. Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan. BMC Medical Ethics, 17:51, 2016.
  27. D. Chalmers, D. Nicol, J. Kaye, J. Bell, A. V. Campbell, C. W. Ho, K. Kato, J. Minari, C. H. Ho, C. Mitchell, F. Molnár-Gábor, M. Otlowski, D. Thiel, S. M. Fullerton and T. Whitton. Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era. BMC Medical Ethics (Review) , 17:39, 2016.
  28. J. Minari. Genomic data sharing in the personal genome era: data sharing policy and ethical considerations. Journal of Medicine, Life and Ethics, Society, Vol. 12, pp 105-114, 2015 (in Japanese).
  29. J. Minari, H. Teare, C. Mitchell, J. Kaye and K. Kato. The emerging need for family-centric initiatives for obtaining consent in personal genome research. Genome Medicine (Comment) , 6:118, 2014.
  30. J. Minari, D. Chalmers and K. Kato. Return of genetic research results: the Japanese experience and its implications for the international debate. SCRIPTed (Analysis) , Vol. 11, pp 180-192, 2014.
  31. G. Yoshizawa, C. W. Ho, W. Zhu, C. Hu, Y. Syukriani, I. Lee, H. Kim, D. F. Tsai, J. Minari and K. Kato. ELSI practices in genomic research in East Asia: implications for research collaboration and public participation. Genome Medicine (Review) , 6:39, 2014.
  32. J. Minari, T. Shirai and K. Kato. Ethical considerations of research policy for personal genome analysis: the approach of the Genome Science Project in Japan. Life Sciences, Society and Policy, 10:4, 2014.
  33. J. Minari and K. Kato. Research governance in the personal genome era. Medicine and Drug Journal, Vol. 50, pp 55-58, 2014 (in Japanese).

Other

The Innovation for Science, Life, and Ethics (ISLE) project
Supported by Research Institute of Science and Technology for Society (RISTEX), Japan Science and Technology Agency (JST)
https://www.islepj.com/